TED演讲稿整理,彩色版《before i die ,I want ...》

时间:2024.4.21

Before I die I want to...

There are a lot of ways the people around us can help improve our lives. We don't bump into every neighbor, so a lot of wisdom never gets passed on, though we do share the same public spaces.

我们周围的人能以很多种方式 来帮我们把生活变得更美好 我们不一定能常常碰到我们的邻居 所以即使我们生活在同一片公共空间里 邻居的智慧也难以被传递开来

So over the past few years, I've tried ways to share more with my neighbors in public space, using simple tools like stickers, stencils and chalk. And these projects came from questions I had, like, how much are my neighbors paying for their apartments? (Laughter) How can we lend and borrow more things without knocking on each other's doors at a bad time? How can we share more of our memories of our abandoned buildings, and gain a better understanding of our landscape? And how can we share more of our hopes for our vacant storefronts, so our communities can reflect our needs and dreams today?

所以在过去的几年里,我尝试着以不同的方式 如用贴纸、展板和粉笔这些简单工具 来在公共空间里与邻居分享更多的东西 这些项目都源自于我自己的一些疑问,如 我的邻居得付多少房租? (笑声)我们怎么样能够从邻里间互借到更多的东西 同时避免在不合时宜的时候敲开对方的门? 我们怎样能够更好地分享各自的 关于被毁弃的建筑的回忆 并更好地理解我们居住的这片土地? 怎样更能表达我们对空置的店面的期待 使我们的社区能反映出 我们现在的需求和梦想?

Now, I live in New Orleans, and I am in love with New Orleans. My soul is always soothed by the giant live oak trees, shading lovers, drunks and dreamers for hundreds of years, and I trust a city that always makes way for music. (Laughter) I feel like every time someone sneezes, New Orleans has a parade. (Laughter) The city has some of the most beautiful architecture in the world, but it also has one of the highest amounts of abandoned properties in America.

我现时住在新奥尔良 并深深地爱上了这座城市 那些生生不息的巨型橡树总是可以抚慰我的灵魂 几百年来,情侣、醉汉和追梦人们 总会稍息在树影下 我深信这一座充满着音乐律动的城市 每当有人打喷嚏时, 我都感觉新奥尔良来了一只游行队伍(笑声) 新奥尔良拥有世界上很多最漂亮的建筑 但同时,她也是全美拥有最多 废弃建筑的城市

I live near this house, and I thought about how I could make it a nicer space for my neighborhood, and I also thought about something that changed my life forever.

我住在这栋房子附近,我就想如何让它 在这片社区里成为一个更好的地方 也思考了另一件事 这件事彻底改变了我的人生

In 2009, I lost someone I loved very much. Her name was Joan, and she was a mother to me, and her death was sudden and unexpected. And I thought about death a lot, and this made me feel deep gratitude for the time I've had, and brought clarity to the things that are meaningful to my life now. But I struggle to maintain this perspective in my daily life. I feel like it's easy to get caught up in the day-to-day, and forget what really matters to you.

2009年,我失去了一个我挚爱的人 她的名字叫琼,对我来讲,她就像我的母亲一样 她死得很突然,没有人预料到 然后我思考了很多关于死亡的事 然后这件事让我对我拥有的时光怀着深切致意 并且 显现出了那些 对我的生命有真正意义的东西 但我却很难在日常生活中保持这种心态 我觉得人们太容易被日复一日的琐碎困住 而忘记什么才是真正重要的事

So with help from old and new friends, I turned the side of this abandoned house into a giant chalkboard and stenciled it with a fill-in-the-blank sentence: "Before I die, I want to ... " So anyone walking by can pick up a piece of chalk, reflect on their lives, and share their personal aspirations in public space.

我于是在一些新老朋友的帮助下 把这栋废弃的房子的一面墙 做成了一个巨型黑板 我在上面写满了同一道填空题 “在死之前,我想??” 所以每一个路过的人都可以捡起一根粉笔 在公共场合里留下一些他们人生的痕迹 且来分享他们内心深处的愿望

I didn't know what to expect from this experiment, but by the next day, the wall was entirely filled out, and it kept growing. And I'd like to share a few things that people wrote on this wall.

我并不知道该从这个实验里期待些什么 但是第二天,整个墙壁都被填满了 而且不断有人添加新的答案 我想跟大家分享一些人们在那面墙上 写的东西

"Before I die, I want to be tried for piracy." (Laughter) "Before I die, I want to straddle the International Date Line." "Before I die, I want to sing for millions." "Before I die, I want to plant a tree." "Before I die, I want to live off the grid." "Before I die, I want to hold her one more time." "Before I die, I want to be someone's cavalry." "Before I die, I want to be completely myself."

“在死之前,我想为我的海盗行为接受审判”(笑声) “在死之前,我想跨过国际日期变更线” “在死之前,我想在上百万的观众面前唱歌” “在死之前,我想种一棵树” “在死之前,我想过隐居的生活” “在死之前,我想再抱她一次” “在死之前,我想成为某个人的骑士” “在死之前,我想要做完全真实的自己”

So this neglected space became a constructive one, and people's hopes and dreams made me laugh out loud, tear up, and they consoled me during my own tough times. It's about knowing you're not alone. It's about understanding our neighbors in new and enlightening ways. It's about making space for reflection and contemplation, and remembering what really matters most to us as we grow and change.

这个本来被遗忘的建筑变成了一个极具建设性的地方 这些人的希望和梦想 让我放声大笑,也黯然落泪 也曾在我经历困境的时候给我安慰 这让我们相信自己并不孤单 让我们对邻居有了全新的 启发心智的了解 这为我们营造了一个反省和思考的空间 也提醒我们在不断成长改变的过程中 什么才是最为重要的

I made this last year, and started receiving hundreds of messages from passionate people who wanted to make a wall with their community, so my civic center colleagues and I made a tool kit, and now walls have been made in countries around the world, including Kazakhstan, South Africa, Australia, Argentina and beyond. Together, we've shown how powerful our public spaces can be if we're given the opportunity to have a voice and share more with one another.

这个黑板是我去年做的,然后我就不断收到 一些热情的人们给我发的信息 说想在他们的社区里也设立一面这样的墙壁 所以我和我的同事们就做了一个小型工具箱 现在,这面墙壁已经遍布全球 包括哈萨克斯坦,南非 澳大利亚 阿根廷等地 这些迹象表明,如果我们能有一个 表达自己的意愿并与他人分享的机会 那么公共空间将发挥巨大的作用

Two of the most valuable things we have are time and our relationships with other people. In our age of increasing distractions, it's more important than ever to find ways to maintain perspective and remember that life is brief and tender. Death is something that we're often discouraged to talk about or even think about, but I've realized that preparing for death is one of the most empowering things you can do. Thinking about death clarifies your life.

我们所拥有的最珍贵的两样东西,一个是时间 还有一个,是与他人的联系 在这个物欲横流的时代里 努力坚持自我,铭记人生的短暂与生命的脆弱 变得比以往任何时代都更重要 我们总是没有勇气谈论死亡 甚至没有勇气去想着死亡 但是我意识到,为死亡做心理准备 是我们能够做到的最有力的事情之一 思考死亡能够让你对自己的人生有更清醒的认识

Our shared spaces can better reflect what matters to us as individuals and as a community, and with more ways to share our hopes, fears and stories, the people around us can not only help us make better places, they can help us lead better lives. Thank you. (Applause)

公共空间可以更好的体现到底什么对我们是真正重要的 无论是对个人来说或者对于整个社区来说 有了更多的方式来分享我们的希望,恐惧和经历 我们身边的人不仅能够帮助我们创造更美好的地方 更帮助我们过上更美好的生活 谢谢


第二篇:TED演讲稿 Alice Dreger


Alice Dreger: Is anatomy d estiny?

I want you to imagine two couples in the middle of 1979 on the exact same day, at the exact same moment, each conceiving a baby -- okay? So two couples each conceiving one baby. Now I don't want you to spend too much time imagining the conception, because if you spend all that time imagining that conception, you're not going to listen to me. So just imagine that for a moment. And in this scenario, I want to imagine that, in one case, the sperm is carrying a Y chromosome, meeting that X chromosome of the egg. And in the other case, the sperm is carrying an X chromosome, meeting the X chromosome of the egg. Both are viable; both take off. We'll come back to these people later.

So I wear two hats in most of what I do. As the one hat, I do history of anatomy. I'm a historian by training, and what I study in that case is the way that people have dealt with anatomy -- meaning human bodies, animal bodies -- how they dealt with bodily fluids, concepts of bodies; how have they thought about bodies. The other hat that I've worn in my work is as an activist, as a patient advocate -- or, as I sometimes say, as an impatient advocate -- for people who are patients of doctors. In that case, what I've worked with is people who have body types that challenge social norms. So some of what I've worked on, for example, is people who are conjoined twins -- two people within one body. Some of what I've worked on is people who have dwarfism -- so people who are much shorter than typical. And a lot of what I've worked on is people who have atypical sex -- so people who don't have the standard male or the standard female body types. And as a general term, we can use the term intersex for this.

Intersex comes in a lot of different forms. I'll just give you a few examples of the types of ways you can have sex that isn't standard for male or female. So in one instance, you can have somebody who has an XY chromosomal basis, and that SRY gene on the Y chromosome tells the proto-gonads, which we all have in the fetal life, to become testes. And so in the fetal life the testes are pumping out testosterone. But because this individual lacks receptors to hear that testosterone, the body doesn't react to the testosterone. And this is a syndrome called androgen insensitivity syndrome. So lots of levels of testosterone, but no reaction to it. As a consequence, the body develops more along the female typical path. When the child is born, she looks like a girl. She is a girl. She is raised as a girl. And it's often not until she hits puberty and she's growing and developing breasts, but she's not getting her period, that somebody figures out something's up here. And they do some tests and figure out that, instead of having ovaries inside and a uterus, she actually has testes inside, and she has a Y chromosome.

Now what's important to understand is you may think of this person as really being male, but they're really not. Females, like males, have in our bodies something called the adrenal glands. They're in the back of our body. And the adrenal glands make androgens, which are a masculinizing hormone. Most females like me -- I believe myself to be a typical female -- I don't actually know my chromosomal make-up but I think I'm probably typical -- most females like me are actually androgen-sensitive. We're making androgen, and we're responding to androgens. The consequence is that somebody like me has actually had a brain exposed to more androgens than the woman born with testes who has androgen insensitivity syndrome. So sex is really complicated; it's not just that intersex people are in the middle of all the sex spectrum -- in some ways, they can be all over the place.

Another example: a few years ago I got a call from a man who was 19 years old, who was born a boy, raised a boy, had a girlfriend, had sex with his girlfriend, had a life as a guy and had just found out that he had ovaries and a uterus inside. What he had was an extreme form of a condition called congenital adrenal hyperplasia. He had XX chromosomes, and in the womb, his adrenal glands were in such high gear that it created, essentially, a masculine hormonal environment. And as a consequence, his genitals were masculinzed, his brain was subject to the more typical masculine component of hormones. And he was born looking like a boy -- nobody suspected anything. And it was only when he had reached the age of 19 that he began to have enough medical problems actually from menstruating internally, that doctors figured out that, in fact, he was female internally.

Okay, so just one more quick example of a way you can have intersex. Some people who have XX chromosomes develop what are called ovotestis, which is when you have ovarian tissue with testicular tissue wrapped around it. And we're not exactly sure why that happens.

So sex can come in lots of different varieties. The reason that children with these kinds of bodies -- whether it's dwarfism, or it's conjoined twinning, or it's an intersex type -- are often normalized by surgeons is not because it actually leaves them better off in terms of physical health. In many cases, people are actually perfectly healthy. The reason they're often subject to various kinds of surgeries is because they threaten our social categories. Or system has been based typicall y on the idea that a particular kind of anatomy comes with a particular identity. So we have the concept that what it means to be a woman is to have a female identity; what it means to be a black person is, allegedly, is to have an African anatomy in terms of your history. And so we have this terribly simplistic idea. And when we're faced with a body that actually presents us something quite different, it startles us in terms of those categorizations.

So we have a lot of very romantic ideas in our culture about individualism. And our nation's really founded on a very romantic concept of individualism. Well you can imagine how startling then it is when you have children that are born who are two people inside of one body. Where I ran into the most heat from this most recently was last year the South African runner, Caster Semenya, had her sex called into question at the International Games in Berlin. I had a lot of journalists calling me, asking me, "Which is the test they're going to run that will tell us w hether or not Caster Semenya is male or female?" And I had to explain to the journalists there isn't such a test.

In fact, we now know that sex is complicated enough that we have to admit nature doesn't draw the line for us between male and female, or between male and intersex and female and intersex; we actually draw that line on nature. So what we have is a sort of situation where the farther our science goes, the more we have to admit to ourselves that these categories that we thought of as stable anatomical categories that mapped very simply to stable identity categories are a lot more fuzzy than we thought. And it's not just in terms of sex. It's also in terms of race, which turns out to be vastly more complicated than our terminology has allowed.

As we look, we get into all sorts of uncomfortable areas. We look, for example, about the fact that we share at least 95 percent of our DNA with chimpanzees. What are we to make of the fact that we differ

from them only really by a few nucleotides? And as we get farther and farther with our science, we get more and more into a discomforted zone where we have to acknowledge that the simplistic categories we've had are probably overly simplistic.

So we're seeing this in all sorts of places in human life. One of the places we're seeing it, for example, in our culture today, in the United States today, is battles over the beginning of life and the end of life. We have difficult conversations about at what point we decide a body becomes a human, such that it has a different right than a fetal life. We have very difficult conversations nowadays -- probably not out in the open as much as within medicine -- about the question of when somebody's dead. In the past, our ancestors never had to struggle so much with this question of when somebody was dead. At most, they'd stick a feather on somebody's nose, and if it twitched, they didn't bury them yet. If it stopped twitching, you bury them. But today, we have a situation where we want to take vital organs out of beings and give them to other beings. And as a consequence, we're stuck with having to struggle with this really difficult question about who's dead, and this leads us to a really difficult situation where we don't have such simple categories as we've had before.

Now you might think that all this breaking-down of categories would make somebody like me really happy. I'm a political progressive, I defend people with unusual bodies, but I have to admit to you that it makes me nervous. Understanding that these categories are really much more unstable than we thought makes me tense. And it makes me tense from the point of view of thinking about democracy. So in order to tell you about that tension, I have to first admit to you that I'm a huge fan of the Founding Fathers. I know they were racists, I know they were sexist, but they were great. I mean, they were so brave and so bold and so radical in what they did that I find myself watching that cheesy musical "1776" every few years, and it's not because of the music, which is totally forgettable. It's because of what happened in 1776 with the Founding Fathers.

The Founding Fathers were, for my point of view, the original anatomical activists, and this is why. What they rejected was an anatomical concept and replaced it with another one that was radical and beautiful and held us for 200 years. So as you all recall, what our Founding Fathers were rejecting was a concept of monarchy, and the monarchy was basically based on a very simplistic concept of anatomy. The monarchs of the old world didn't have a concept of DNA, but they did have a concept of birthright. They had a concept of blue blood. They had the idea that the people who would be in political power should be in political power because of the blood being passed down from grandfather to father to son and so forth. The Founding Fathers rejected that idea, and they replaced it with a new anatomical concept, and that concept was all men are created equal. They leveled that playing field and decided the anatomy that mattered was the commonality of anatomy, not the difference in anatomy, and that was a really radical thing to do.

Now they were doing it in part because they were part of an Enlightenment system where two things were growing up together. And that was democracy growing up, but it was also science growing up at the same time. And it's really clear, if you look at the history of the Founding Fathers, a lot of them were very interested in science, and they were interested in a concept of a naturalistic world. They were moving away from supernatural explanations, and they were rejecting things like a supernatural concept of power, where it transmitted because of a very vague concept of birthright.

They were moving towards a naturalistic concept. And if you look, for example, in the Declaration of Independence, they talk about nature and nature's God. They don't talk about God and God's nature. They're talking about the power of nature to tell us who we are. So as part of that, they were coming to us with a concept that was about anatomical commonality. And in doing so, they were really setting up in a beautiful way the Civil Rights movement of the future. They didn't think of it that way, but they did it for us, and it was great.

So what happened years afterward? What happened was women, for example, who wanted the right to vote, took the Founding Fathers' concept of anatomical commonality being more important than anatomical difference and said, "The fact that we have a uterus and ovaries is not significant enough in terms of a difference to mean that we shouldn't have the right to vote, the right to full citizenship, the right to own property, etc., etc." And women successfully argued that. Next came the successful Civil Rights movement, where we found people like Sojourner Truth talking about, "Ain't I a woman?" We find men on the marching lines of the Civil Rights movement saying, "I am a man." Again, people of color appealing to a commonality of anatomy over a difference of anatomy, again, successfully. We see the same thing with the disability rights movement.

The problem is, of course, that, as we begin to look at all that commonality, we have to begin to question why we maintain certain divisions. Now mind you, I want to maintain some divisions, anatomically, in our culture. For example, I don't want to give a fish the same rights as a human. I don't want to say we give up entirely on anatomy. I don't want to say five-year-olds should be allowed to consent to sex or consent to marry. So there are some anatomical divisions that make sense to me and that I think we should retain. But the challenge is trying to figure out which ones they are and why do we retain them and do they have meaning.

So let's go back to those two beings conceived at the beginning of this talk. We have two beings, both conceived in the middle of 1979 on the exact same day. Let's imagine one of them, Mary, is born three months prematurely, so she's born on June 1, 1980. Henry, by contrast, is born at term, so he's born on March 1, 1980. Simply by virtue of the fact that Mary was born prematurely three months, she comes into all sorts of rights three months earlier than Henry does -- the right to consent to sex, the right to vote, the right to drink. Henry has to wait for all of that, not because he's actually any different in age, biologically, except in terms of when he was born.

We find other kinds of weirdness in terms of what their rights are. Henry, by virtue of being assumed to be male -- although I haven't told you that he's the XY one -- by virtue of being assumed to be male is now liable to be drafted, which Mary does not need to worry about. Mary, meanwhile, cannot in all the states have the same right that Henry has in all the states, namely, the right to marry. Henry can marry in every state a woman, but Mary can only marry today in a few states a woman.

So we have these anatomical categories that persist that are in many ways problematic and questionable. And the question to me becomes: What do we do, as our science gets to be so good in looking at anatomy, that we reach the point where we have to admit that a democracy that's been based on anatomy might start falling apart? I don't want to give up the science, but at the same time it

kind of feels sometimes like the science is coming out from under us. So where do we go? It seems like what happens in our culture is a sort of pragmatic attitude: "Well, we have to draw the line somewhere, so we will draw the line somewhere." But a lot of people get stuck in a very strange position.

So for example, Texas has at one point decided that what it means to marry a man is to mean that you don't have a Y chromosome, and what it means to marry a woman means you do have a Y chromosome. Now in practice they don't actually test people for their chromosomes. But this is also very bizarre, because of the story I told you at the beginning about androgen insensitivity syndrome.

If we look at one of the founding fathers of modern democracy, Dr. Martin Luther King, he offers us something of a solution in his "I have a dream" speech. He says we should judge people "based not on the color of their skin, but on the content of their character," moving beyond anatomy. And I want to say, "Yeah, that sounds like a really good idea." But in practice, how do you do it? How do you judge people based on the content of character? I also want to point out that I'm not sure that is how we should distribute rights in terms of humans, because, I have to admit, that there are some golden retrievers I know that are probably more deserving of social services than some humans I know. I also want to say there are probably also some yellow Labradors that I know that are more capable of informed, intelligent, mature decisions about sexual relations than some 40-year-olds that I know.

So how do we operationalize the question of content of character? It turns out to be really difficult. And part of me also wonders, what if content of character turns out to be something that's scannable in the future -- able to be seen with an fMRI? Do we really want to go there? I'm not sure where we go.

What I do know is that it seems to be really important to think about the idea of the United States being in the lead of thinking about this issue of democracy. We've done a really good job struggling with democracy, and I think we would do a good job in the future. We don't have a situation that Iran has, for example, where a man who's sexually attracted to other men is liable to be murdered, unless he's willing to submit to a sex change, in which case he's allowed to live.

We don't have that kind of situation. I'm glad to say we don't have the kind of situation with -- a surgeon I talked to a few years ago who had brought over a set of conjoined twins in order to separate them, partly to make a name for himself. But when I was on the phone with him, asking why he was going to do this surgery -- this was a very high-risk surgery -- his answer was that, in this other nation, these children were going to be treated very badly, and so he had to do this. My response to him was, "Well, have you considered political asylum instead of a separation surgery?" The United States has offered tremendous possibility for allowing people to be the way they are, without having them have to be changed for the sake of the state. So I think we have to be in the lead.

Well, just to close, I want to suggest to you that I've been talking a lot about the fathers. And I want to think about the possibilities of what democracy might look like, or might have looked like, if we had more involved the mothers. And I want to say something a little bit radical for a feminist, and that is that I think that there may be different kinds of insights that can come from different kinds of anatomies, particularly when we have people thinking in groups. Now for years, because I've been interested in intersex, I've also been interested in sex difference research. And one of the things that

I've been really interested in is looking at the differences between males and females in terms of the way they think and operate in the world. And what we know from cross-cultural studies is that females, on average -- not everyone, but on average -- are more inclined to be very attentive to complex social relations and to taking care of people who are basically vulnerable within the group. And so if we think about that, we have an interesting situation on our hands.

Years ago, when I was in graduate school, one of my graduate advisers who knew I was interested in feminism -- I considered myself a feminist, as I still do -- asked a really strange question. He said, "Tell me what's feminine about feminism." And I thought, "Well that's the dumbest question I've ever heard. Feminism is all about undoing stereotypes about gender, so there's nothi ng feminine about feminism." But the more I thought about his question, the more I thought there might be something feminine about feminism. That is to say, there might be something, on average, different about female brains from male brains that makes us more attentive to deeply complex social relationships and more attentive to taking care of the vulnerable.

So whereas the fathers were extremely attentive to figuring out how to protect individuals from the state, it's possible that if we injected more mothers into this concept, what we would have is more of a concept of, not just how to protect, but how to care for each other. And maybe that's where we need to go in the future, when we take democracy beyond anatomy, is to think less about the individual body, in terms of the identity, and think more about those relationships. So that as we the people try to create a more perfect union, we're thinking about what we do for each other.

Thank you.

(Applause)

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